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Managing Chronicity in Unequal States

Ethnographic Perspectives on Caring

Surveys how patients with chronic conditions navigate unequal healthcare systems around the world.
Managing Chronicity in Unequal States offers a global survey of how people experience chronic conditions—from Alzheimer’s patients institutionalized in the United Kingdom to homeless people with psychiatric disorders in India. Contributors explore how communities navigate stratified healthcare systems whose unspoken attitudes toward human worth negatively affect their wellbeing. Whether the state intrudes into their intimate lives or abandons them to a market-driven runaround, the authors find that people with chronic conditions must negotiate (inter)dependencies in both professional and personal relationships primarily defined by inequality.

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Table of Contents

Notes on contributors Foreword Emily Yates-Doerr Introduction Laura Montesi and Melania Calestani 1. A house of cards: chronicity, care packages and a ‘good life’ Lisa Ballesteros 2. (Un)deservingness and disregard: chronicity, hospice and possibilities for care on the American periphery Devin Flaherty 3. Publicly privatised: relative care support and the Neoliberal Reform in Finland Erika Takahashi 4. The ‘hassle’ of ‘good’ care in dementia: negotiating relatedness in the navigation of bureaucratic systems of support Lilian Kennedy 5. Assemblages of care around albinism: kin-based networks and (in)dependence in contemporary Tanzania Giorgio Brocco 6. Alcoholism and evangelical healing in indigenous Mexico: care at the margins of the state Chiara Bresciani 7. When ‘care’ leads to ‘chronicity’: exploring the changing contours of care of homeless people living on the streets in India Sudarshan Kottai and Shubha Ranganathan 8. ‘My body is my laboratory’: care experiments among persons who use drugs in Downtown Montreal Rossio Motta-Ochoa and Nelson Arruda 9. ‘These doctors don’t believe in PANS’: confronting uncertainty and a collapsing model of medical care Maria LaRusso and César Abadía-Barrero 10. Chronic living in Zombieland: care in between survival and death Marcos De Andrade Neves Afterword Ciara Kierans Index

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