Pain and Shock in America

Politics, Advocacy, and the Controversial Treatment of People with Disabilities

Jan Nisbet

Pain and Shock in America

Jan Nisbet

Distributed for Brandeis University Press

With Contributions by Nancy R. Weiss
432 pages | 18 halftones, 2 tables | 6 x 9
Cloth $40.00 ISBN: 9781684580743 Will Publish October 2021
The first book to be written on the Judge Rotenberg Center and their use of painful interventions to control the behavior of children and adults with disabilities.

For more than twenty years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. Advocates and lawyers have filed complaints and lawsuits to both use them and ban them, scientists have written hundreds of articles for and against them, and people with disabilities have lost their lives and, some would say, lived their lives because of them. There are families who believe deeply in the need to use aversives to control their children’s behavior. There are others who believe the techniques used are torture. All of these families have children who have been excluded from numerous educational and treatment programs because of their behaviors. For most of the families, placement at the Judge Rotenberg Center is the last resort.

This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions. It chronicles and analyzes the events and people involved for over forty years that contributed to the inability of the state of Massachusetts to stop the use of electric shock, and other severe forms of punishment on children and adults with disabilities. It is a long story, sad and tragic, complex, filled with intrigue and questions about society and its ability to protect and support its most vulnerable citizens.
 
Contents
List of Illustrations
Foreword
Acknowledgments

Chapter I. A Long Story
Chapter II. How We Got to This Place
Chapter III. Encouraged to Expand to California
Chapter IV. Pushing Back
Chapter V. The Death of Vincent
Chapter VI. The Food and Drug Administration Permits the Use of Electric Shock on People with Disabilities
Chapter VII. Here Comes National Institutes of Health: A National Outcry After the Office for Children’s and Mary Kay Leonard’s Loss to BRI
Chapter VIII. Staging the Next Battleground
Chapter IX. Bad Faith or Responsible Government: Another Attempt to Limit the Use of Aversives
Chapter X. Contempt
Chapter XI. More Legal Issues and Advocates Take Action: Weiss and Nisbet
Chapter XII. The FDA Bans the Electric Shock Device: A Final Ruling? Weiss and Nisbet

Epilogue
Chronology
Endnotes
Biographical Note
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