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Distributed for University of British Columbia Press

Indigenous Peoples and Dementia

New Understandings of Memory Loss and Memory Care

Dementia is on the rise around the world, and health organizations in Canada, the United States, and New Zealand are responding to the urgent need – voiced by communities and practitioners – for guidance on how best to address memory loss in Indigenous communities. This innovative volume responds to the call by bringing together, for the first time, studies and Indigenous teaching stories that address three key areas of concern: prevalence, causes, and public discourse; Indigenous perspectives on care and prevention; and culturally safe application of research to Elder care. Collectively, the contributors demonstrate that care must be grounded in collaborative research informed by Indigenous knowledge and worldviews.

264 pages

Table of Contents

Foreword / Rod McCormick

Introduction / Wendy Hulko, Jean E. Balestrery, and Danielle Wilson

We Call It Healing / Secwepemc Elder, Wendy Hulko, Danielle Wilson, Star Mahara, Gwen Campbell-McArthur, Jean William, Cecilia DeRose, and Estella Patrick Moller

Part 1: Prevalence, Causes, and Public Discourse

1 Current and Projected Dementia Prevalence in First Nations Populations in Canada / Jennifer Walker and Kristen Jacklin

2 Indigenous Vascular Dementia: An Indigenous Syndemic Dementia Model / J. Neil Henderson, Linda D. Carson, and Kama King

3 A Story about Joe in the News Media: Decolonizing Dementia Discourse / Suzanne MacLeod

Coyote: Keeper of Memories / Danielle Wilson, Gwen Campbell-McArthur, Wendy Hulko, Star Mahara, Jean William, Cecilia DeRose, and Estella Patrick Moller

Part 2: Indigenous Perspectives on Care and Prevention

4 Perceptions of Dementia Prevention among Anishinaabe Living on Manitoulin Island / Jessica E. Pace, Kristen Jacklin, Wayne Warry, and Karen Pitawanakwat

5 The Understanding from Within Project: Perspectives from Indigenous Caregivers / Carrie Bourassa, Melissa Blind, Kristen Jacklin, Eric Oleson, and Kate Ross-Hopley

6 Oldest Age Does Not Come Alone: “What’s the Name of the Day?” / Mere Kepa

A Fecund Frontier: We Listen ... in between Talk ... We Listen / Jean E. Balestrery and Sophie “Eqeelana Tungwenuk” Nothstine

Part 3: Applying Theory and Knowledge to Practice

7 Depression, Diabetes, and Dementia: Historical, Biocultural, and Generational Factors among American Indian and Alaska Native Elders / Linda D. Carson, J. Neil Henderson, and Kama King

8 Adapting CIRCA-BC in the Post-Residential-School Era / Barbara Purves and Wendy Hulko

9 Focu

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