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Distributed for University of British Columbia Press

Disability Politics and Care

The Challenge of Direct Funding

“We do not need care!” is a rallying cry for disability movements. It is informed by a recognition that a lack of choice over simple care decisions – like what to eat or what to wear – is a subtle yet pervasive form of violence endured by many disabled people. Disability Politics and Care examines an independent living program to explore what happens when people with disabilities take control of their own care arrangements. Christine Kelly documents responses by a wide range of stakeholders of this program and reflects on some of its broader social and political implications.

220 pages

Table of Contents

Introduction: The Tensions of Care

Part 1: Conceptualizing and Researching Care

1 Accessible Care

2 Research, Care, and Embracing the Possibilities of Failure

Part 2: Removing Care

3 “In My Mind That’s Not What Care Is”: Care Is Not What Happens Here

4 Exploring the “Authentic Times to Care”: The Places Where Care Belongs

Part 3:Policy and Social Movement Implications

5 Intricate Messages, Local and Transnational Erasures

6 Governing Independent Living

Conclusion: Removing Care Amid a “Crisis of Care”

Works Cited


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