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Living with Polio

The Epidemic and Its Survivors

Polio was the most dreaded childhood disease of twentieth-century America. Every summer during the 1940s and 1950s, parents were terrorized by the thought that polio might cripple their children. They warned their children not to drink from public fountains, to avoid swimming pools, and to stay away from movie theaters and other crowded places. Whenever and wherever polio struck, hospitals filled with victims of the virus. Many experienced only temporary paralysis, but others faced a lifetime of disability.

Living with Polio is the first book to focus primarily on the personal stories of the men and women who had acute polio and lived with its crippling consequences. Writing from personal experience, polio survivor Daniel J. Wilson shapes this impassioned book with the testimonials of more than one hundred polio victims, focusing on the years between 1930 and 1960. He traces the entire life experience of the survivors—from the alarming diagnosis all the way to the recent development of post-polio syndrome, a condition in which the symptoms of the disease may return two or three decades after they originally surfaced.

Living with Polio follows every physical and emotional stage of the disease: the loneliness of long separations from family and friends suffered by hospitalized victims; the rehabilitation facilitieswhere survivors spent a full year or more painfully trying to regain the use of their paralyzed muscles; and then the return home, where they were faced with readjusting to school or work with the aid of braces, crutches, or wheelchairs while their families faced the difficult responsibilities of caring for and supporting a child or spouse with a disability.

Poignant and gripping, Living with Polio is a compelling history of the enduring physical and psychological experience of polio straight from the rarely heard voices of its survivors.

Read an excerpt.


312 pages | 20 halftones, 1 line art | 6 x 9 x 9 | © 2005

Culture Studies

History: American History

History of Science

Medicine

Social Work

Reviews

“A polio survivor himself, Daniel Wilson has scoured America’s polio narratives in order to distill the essential polio experience from the onset of the disease through to the late effects. In focusing on those individuals who have felt driven to recount their experiences of coming to terms with differing degrees of disability, he provides valuable insights into the history, not just of a disease, but of a generation-those postwar, pre-Salk vaccine babyboomers who succumbed to the annual epidemics of what was still sometimes called ’infantile paralysis.’”

Tony Gould | Tony Gould

“Daniel Wilson’s Living with Polio is an excellent history of this important disease. Wilson’s scholarship is evident, as is his personal polio story, which makes this book one of a kind and truly worth reading. This book will appeal to scholars, health care providers, polio survivors, and anyone interested in history. It is a remarkable book that gives the real story of what happened during those frightening years in the first half of the twentieth century when polio ran rampant.”

Julie K. Silver | Julie K. Silver

“Moving and informative, personal and universal-a highly readable account of the plague of poliomyelitis by a fine writer who has experienced the illness himself.”

Richard Selzer | Richard Selzer

Table of Contents

Acknowledgments
1. Introduction
2. “I’m Afraid It’s Polio”
3. The Crisis of Acute Poliomyelitis
4. Covenants of Work: Recovery and the Rehabilitation Hospital
5. Straws on the Ceiling: Life on the Polio Wards
6. Going Home to a Long Recovery
7. Resuming Life after Polio
8. Living with Polio
9. An Old Foe Returns: Post-Polio Syndrome
10. Epilogue
Notes
Index

Awards

Library Journal: Best Consumer Health Book
Honorable Mention

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