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Distributed for Eburon Academic Publishers

Surviving Hemophilia

A Road Trip Through the World Of Healthcare

With a Foreword by Marcel Levi

Cees Smit, was born with hemophilia almost seventy years ago. No one expected him to survive long into adulthood, much less old age, but despite that prognosis he has lived a full life. The successes and failures in the field of treatments for hemophilia during the past decades, have led to his work today as a lobbyist for patients’ rights and the improvement of patients’ position in the healthcare system. Of particular interest to Smit is the issue of large-scale trade in human blood plasma—a topic he has discussed in various publications since 1979, and one that became especially critical during the AIDS crisis. Covering the history of hemophilia, hepatitis, and HIV, and our attempts to treat and cure them, Surviving Hemophilia also serves as a call for our health care systems to return to their traditional ideals of altruism, self-sufficiency, unity, and solidarity.

240 pages | 84 halftones | 6 3/4 x 9 1/2

Biography and Letters

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Table of Contents

Introduction; Chapter 1. A carefree childhood! Chapter 2. Growing up looking for opportunities; Chapter 3. The hemophilia family; Chapter 4. The trade in human plasma before the HIV era; Chapter 5. The AIDS epidemic; Chapter 6. A world-wide disaster; Chapter 7. AIDS gets a human face; Chapter 8. Fighting for justice; Chapter 9. The “after AIDS” era and the impact of biotechnology; Chapter 10. A new career as patient advocate: “Cees knows everyone, everyone knows Cees”; Chapter 11. Costs of care; Chapter 12. The plasma market; Chapter 13. Time for reflection; Chapter 14. Looking back / going forward; Literature; List of figures;

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