Researchers and their ’subjects’

Ethics, power, knowledge and consent

Edited by Marie Smyth and Catherine Bond

Researchers and their ’subjects’

Edited by Marie Smyth and Catherine Bond

Distributed for Bristol University Press

240 pages | 6.14 x 9.21
Paperback $40.95 ISBN: 9781861345141 Published October 2004 For sale in North and South America only
This book examines the role of participants in research and how research ethics can be put into practice. Health, social, and journalistic research are currently subject to very different forms of regulation and codes of practice. By including the experiences of researchers and their subjects the book explores the disciplinary divides.
Introduction - Emma Williamson and Marie Smyth

Part One: Participation and inclusion
Ethical considerations in service-user-led research: Strategies for Living Project - Sarah Wright, Rachel Waters, Vicky Nicholls and members of the Strategies for Living Project
Making the decision about enrolment in a randomised controlled trial - Tracey J. Stone
Ethical protection in research: including children in the debate - Trudy Goodenough, Emma Williamson, Julie Kent and Richard Ashcroft
'An equal relationship'?: people with learning difficulties getting involved in research - Beth Tarleton, Val Williams, Neil Palmer and Stacey Gramlich

Part Two: The review and governance process
Research with psychiatric patients: knowing their own minds? - Sarah Nelson
Researching end of life in old age: ethical challenges - Ailsa Cameron, Liz Lloyd, Naomi Kent and Pat Anderson

Part Three: Researchers' relationships with participants
Interviewing: the unspoken compact - Jean Rafferty
Using participative action research with war-affected populations: lessons from research in Northern Ireland and South Africa - Marie Smyth
Conducting longitudinal epidemiological research in children - John Henderson
Speaking truth to power: experiencing critical research - Phil Scraton
Domestic violence and research ethics - The Domestic Violence Research Group (DRVG), University of Bristol

Conclusion - Marie Smyth and Emma Williamson
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