Cloth $45.00 ISBN: 9780226213095 Published June 2007
Paper $21.00 ISBN: 9780226213101 Published April 2009
E-book $7.00 to $21.00 About E-books ISBN: 9780226213118 Published September 2008

Inclusion

The Politics of Difference in Medical Research

Steven Epstein

Steven Epstein

424 pages | 2 line drawings | 6 x 9 | © 2007
Cloth $45.00 ISBN: 9780226213095 Published June 2007
Paper $21.00 ISBN: 9780226213101 Published April 2009
E-book $7.00 to $21.00 About E-books ISBN: 9780226213118 Published September 2008

With Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions.

 

Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men—and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clinical research. While the prominence of these inclusive practices has offered hope to traditionally underserved groups, Epstein argues that it has drawn attention away from the tremendous inequalities in health that are rooted not in biology but in society.

 

“Epstein’s use of theory to demonstrate how public policies in the health profession are shaped makes this book relevant for many academic disciplines. . . . Highly recommended.”—Choice

 

“A masterful comprehensive overview of a wide terrain.”—Troy Duster, Biosocieties

 

American Political Science Association: APSA-Don K. Price Award
Won

ASA Science, Knowledge, Technology Sect: ASA - Robert K. Merton Award
Won

American Sociological Association: ASA-Distinguished Book Award (Major Award)
Won

American Sociological Association: ASA-Eliot Freidson Award
Won

View Recent Awards page for more award winning books.
Stefan Timmermans
“In this fascinating book, Steven Epstein explains how beginning in the 1980s a variety of social movements prevailed in changing inclusion criteria of unrepresented research subjects in clinical trials in the United States. In a relatively short period of time, medical researchers were expected to include more women, racial and ethnic minorities, children, and elderly as research subjects. Epstein pays close attention to the historical precedents of the arguments used in favor and against this change in thinking about what kind of differences matter in biomedical research, its consequences for research, and its far-reaching implications for identity politics. The result is a convincing, widely-accessible, and well-written account of the legal, political, social, and scientific aspects of this change in policy and thinking.”--Stefan Timmermans, author of Postmortem
 
Choice
"Epstein's use of theory to demonstrate how public policies in the health profession are shaped makes this book relevant for many academic disciplines. . . . Highly recommended."
Elisa J. Gordon | New England Journal of Medicine
"Inclusion offers a balanced analysis of the positive and negative effects of institutional changes on groups that are traditionally underrepresented in biomedical research and on biomedical research in general. . . . The lessons learned from this book may help researchers and policymakers who are involved in biomedical research rethink their conceptualization of human subgroups for analysis."
Troy Duster | Biosocieties
"A masterful comprehensive overview of a wide terrain."
Deborah B. Gould | American Journal of Sociology
"Epstein's book bursts with theoretical insights. . . . Inclusion also vividly and concretely illustrates how power operates through state and scientific classificatory processes. . . . It will be of interest to many--scholars in science studies, critical studies of race and gender, social movement studies, political sociology, and social theory, as well as medical professionals and health policy advocates and experts."
Contents
Acknowledgments  
List of Abbreviations  
 
Introduction: Health Research and the Remaking of Common Sense  
1 How to Study a Biopolitical Paradigm   
2 Histories of the Human Subject  
3 The Rise of Resistance: Framing the Critique of the Standard Human   
4 The Path to Reform: Aligning Categories, Targeting the State   
5 Opposition to Reform: Controversy, Closure, and Boundary Work   
6 Formalizing the New Regime  
7 From the Standard Human to Niche Standardization   
8 Counts and Consequences: Monitoring Compliance  
9 The Science of Recruitmentology and the Politics of Trust  
10 To Profile or Not to Profile: What Difference Does Race Make?   
11 Sex Differences and the New Politics of Women’s Health  
12 Whither the Paradigm?   
Conclusion: Identity, Difference, Disparities, and Biopolitical Citizenship   
 
Chronology  
Interviews  
Notes  
Index  
For more information, or to order this book, please visit http://www.press.uchicago.edu
Google preview here

Chicago Manual of Style |

Keep Informed

JOURNALs